I was up much later that usual on Wednesday night, waiting for my husband to return from a work gig in London -- a simple journey that turned into a nine hour ordeal due to multiple train failures on the way. The whole transport system was in chaos that night: every single train from Paddington Station cancelled; and then Waterloo Station, where the weary travellers were directed, paralyzed by breakdowns as well. He finally got home after one in the morning, and I couldn't sleep until he'd made it back safely.
Public transit frustrations are an ordinary part of modern life, of course (at least here in Britain, where our rail system is a disgrace) -- so why am I telling you about it? Because these small, everyday, uncontrollable events affect those of us in the arts with long-term health conditions disproportionately. After losing just a few hours of sleep, I woke up on Thursday morning to a spoon drawer close to empty, my studio schedule disrupted once again. This was not a major problem, of course. I rested up, did some work from home, and I'm back in the studio this morning, catching up on the tasks that I'd missed. My work plans are often affected by these kinds of things, so small and common that they're rarely mentioned....
But today I decided to talk about it. Shining a light on the difficulties of the art-making process can be as important as noting the things that inspire us or help us progress -- including the particular challenges faced by artists with disabilities or medical conditions.
Most healthy people can understand, and empathize with, the disruptive nature of a large medical crisis; but the daily effects of life's random ups and downs on those of us with limits of strength are perhaps less obvious. These small things -- trivial and constant -- chip away at our work time, our output, our income, and sometimes even our self-esteem, as we watch healthier colleagues speed ahead of us, unencumbered by the weight that we carry.
The saving grace comes each and every time that a friend or colleague stops, looks back, sees us struggling on, and extends a helping hand. That happens often too. The trials of illness are many; but so are the blessings, which shine bright as the moon.
The second reason I have chosen to write about this is to express my solidarity with all of the writers, painters, and other artists out there coping with various medical conditions: determined to keep working, keep creating, keep contributing to the social good, but not always able to control exactly how and when. Viewed from the outside, our work pace can seem slow, or flakey, or lazy compared to the pace and output of those with reliable strength -- yet as a group, we tend to be more self-disciplined and hard-working, not less; for when energy is limited, you quickly learn to make good and efficient use of whatever work time the body allows.
This wasn't the post I was planning for today. This isn't the week I was planning to have. But this too is part of the artists' life. This too is part of the discussion.